For parents of children with disabilities, it is simple to
become caught up in daily life, to see each day as a struggle requiring all of
our effort and energy. Without a vision of our child's future, however, our
efforts lack a target on which to focus.
That is why IEPs have goals - in order to determine progress, we have to know
progress toward what. Life, like IEPs needs goals so that we know where we want
our child to be in three, five, ten or more years.
It is essential to schedule a block of time to prepare a
vision statement. If it has been awhile since you really thought about the full
range of possibilities for your child's future, then it may take some time to
complete the vision statement. Make a list of what you want for her life -
fulfillment, love, happiness, health, friendships, opportunities. Then consider
how these will be realized in her life. Think about the following questions and
envision how they will look in your child's life. Ask your child to answer
these questions and learn what she wants for her life. If your child cannot
answer some or all of these questions, then consider asking others who are
close to her for their insights.
- What are your child's interests?
- What are her strengths?
- What is the nature of her disabilities?
- For a school-aged child, in what classroom environment would she like to be? (This does not have to be the kind of class she is in now, but where ideally you want to see her within the next three years. This is the vision that you hope will be created in your child's life, so nothing is off the table of possibilities, including true inclusion, where the proportion of students with disabilities to the class size is the same as naturally occurs in society.)
- For an adult or transitioning student, how will she be employed? (This can include self-employment, paid employment and volunteer work.)
- Where will she live and with whom, if anyone? (Home ownership, an apartment with a friend or support person, a group home, with family, etc.)
- What will her community look like? How and in what will she participate in the community? (Playing sports, engaging in the arts, joining a book club, belonging to a religious organization, etc.)
Write down your answers. Create a word picture of your child
and her future. Include photos of your child doing something she enjoys or that
shows her capabilities and strengths. Then print off copies or consider
creating a PowerPoint® presentation to share the vision with the people who can
help make the vision come true - teachers, therapists, the IEP team, family, friends,
and service providers. Help them get to know your child as you know her, and
not as someone defined by the label of her disability.
Review the vision
statement before the annual IEP, IFSP or ISP meeting to keep the vision in mind
when developing the next plan. Update as necessary and at least every 3-5
years. Ask your child for input and be supportive of her dreams, which will
probably change over time, just as yours
do. Include her dreams and goals in the vision for her future.
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